Limb Body Wall Complex - Continuing The Journey

Limb Body Wall Complex - Continuing The JourneyLimb Body Wall Complex - Continuing The JourneyLimb Body Wall Complex - Continuing The Journey
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    • Home
    • About US
      • Who Are We?
      • Our Babies' Legacies
      • About Our Facebook Group
    • Our Stories
      • Beatrix Elizabeth
      • Sean's Story
      • Joshua’s Story
      • Caroline's Story
      • Baby Bear's Story
      • Angel's Story
    • Dear Medical Professional
    • About LBWC
      • What is LBWC?
      • What Causes LBWC?
      • Differential Diagnosis
      • Survivors
    • Choices
      • Termination
      • Continuing Your Pregnancy
      • Undecided?
      • Early Induction
    • Birth Plans
      • Aggressive Intervention
      • Palliative Care
      • Miscarraige/Stillbirth

Limb Body Wall Complex - Continuing The Journey

Limb Body Wall Complex - Continuing The JourneyLimb Body Wall Complex - Continuing The JourneyLimb Body Wall Complex - Continuing The Journey

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  • Dear Medical Professional
  • About LBWC
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What Is Limb Body Wall Complex?

 
Limb-body wall complex (LBWC) is a rare fetal polymalformation of uncertain etiology, but has been regarded as sporadic in nature with a low recurrence risk. (1) 

What Does This Actually Mean?

 This means that Limb Body Wall Complex is a:   

1) rare fetal polymalformation- a rare multi-deformity of a fetus  

2) of uncertain etiology- they don't know exactly what causes it   

3) but has been sporadic in nature- it doesn't happen very often, and is scattered over different areas  

4) with a low recurrence risk-  it usually won't happen to the same family twice. 

What Type Of Defects Are Generally Seen In LBWC?

 

Limb Body Wall Complex is usually defined as consisting of 2 of the following 3 fetal anomalies:
 


1) Thoraco-abdominoschisis or abdominoschisis-
 

this means that there is an opening in your baby's abdomen, and there are internal organs protruding through the opening.
 


There are two types of openings:


Gastroschisis (which is an uncovered opening) or Omphalocele (which is a covered opening).


Thoraco-abdominoschisis means the opening extends from the chest through the abdomen.
 

Abdominoschisis means that the opening starts at a lower point and only extends through the abdomen.
 


2) Limb Defects- this could mean a number of different limb deformities, including, but not limited to club foot and/or missing limbs.


3) Cranio-facial defects- cleft lip/palate, encephalocele, exencephaly, etc.


Other common anomalies associated with LBWC are:

Short Umbilical Cord, Congenital Scoliosis, Horseshoe Kidneys, Absent Organs, and Spina Bifida


Also-


There have been two types of LBWC identified: (2)

 Type 1, "placentocranial adhesion phenotype" which consists of craniofacial defects  

Type 2, "placentoabdominal adhesion phenotype" which consists of abdominal, spinal, extremity, and genital defects.

Can/Will This Happen Again In Subsequent Pregnancies?

Because Limb Body Wall Complex is most likely caused by an external disruption, rather than a congenital malformation, the risk to future pregnancies has been classified as “negligible”. At this time, there is no known genetic cause for LBWC. 


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